WE ARE PROUD TO ANNOUNCE THAT WE HAVE BEEN AWARDED £10,000 FUNDING FROM THE NATIONAL LOTTERY FUND!

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This was awarded for a project to organise a 2 night stay for families affected by Congenital Myotonic Dystrophy to meet others affected by this condition. It will give an opportunity for parents and carers to talk and discuss ways to deal with any issues that they may have.
It will also give the ‘PAK’ team a chance to find out what they could do that would help to alleviate any problems